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IOA

“A NEW BEGINNING”

(Nota: Traducción al español de esta página la siguiente versión Inglés)

ITS MISSION

The International Ostomy Association, an association of Regional Ostomy Associations, is committed to the improvement of the quality of life of ostomates and those with related surgeries.

It provides to its member Regional Ostomy Associations information; it advocates on all related matters and policies on the international level; it encourages the highest possible standards of surgery, medical attention and patient after-care for ostomates, and the use by medical professionals of trained ostomate volunteers as a member of the multi- disciplinary team organized to help rehabilitate ostomates; it helps to form new Regional Ostomy Associations; and, it motivates ostomates around the world to be engaged in forming and running Ostomy Associations.

HISTORY AND ORIGIN

The International Ostomy Association was founded in 1975 to associate, on a voluntary basis, National Ostomy Associations worldwide, in order to promote the health care of ostomates, to aid in their rehabilitation and to improve their quality of life. IOA is a non-profit-making, nonpolitical and religiously neutral organization concerned only with the health and welfare of ostomates. It advocates for the human rights of ostomates and is pledged to cooperate with medical, nursing and associate professions. IOA’s organizational structure and governance were revised in 2010.

Why was there a need to change IOA?

It was apparent to IOA’s membership, the ostomy product manufacturers and our allied professional medical partners that global social and economic changes were occurring that impacted the way IOA was doing business. IOA was having difficulty in meeting the 21st Century needs of the global ostomy community. Ostomy rehabilitation programs and initiatives that worked since IOA’s founding in 1975 were no longer effective. A lack of financial and manpower resources resulted in new humanitarian programs designed to address these needs were not being developed or implemented. With sponsorships decreasing alternative ways to fund IOA’s organizational operations had to be found. Confidence in IOA’s ability to perform was lacking and support waning. For IOA to continue as a viable organization it had to react to these external factors. It was imperative to examine the way IOA was doing business and to make those changes necessary for it to regain its status as a worldwide authority on ostomy patient rehabilitation.

Who made the decision to make the change?

In 2009, IOA President, Dr. Harikesh Buch, appointed a Taskforce of former IOA leaders to examine the relevancy of IOA’s Mission and determine if it accurately describes the organization as it needed to exist in the 21st Century. The Taskforce was mandated to define a new Mission and to propose changes in the present organizational structure and governance needed to fulfill this Mission. The result of the Taskforce deliberation was submitted to the IOA Executive Council for review and approval. Once approved by the Executive Council a draft of the revised Constitution was submitted to the IOA members for their review and proposed amendments as deemed appropriate. The amended document was then submitted to the IOA World Council meeting in Frankfurt, Germany, November 2010 where on 19 November it received final approval.

What was the “old” IOA Regional Alignment?

Prior to November, 2010, IOA consisted of 5 Regional Associations … the Asociacion Latino Americana de Ostomizados (ALADO), the Asian Ostomy Association (AOA), the European Ostomy Association (EOA), the North and Central America and Caribbean Ostomy Association (NCACOA) and the South Pacific Ostomy Association (SPOA). The work of IOA was carried out by the World Council, IOA’s highest authority, the Regional Ostomy Associations and the Executive Council.

What is the “new” IOA Regional Alignment?

After November, 2010, the “new IOA’s” membership consists of 3 Regional Associations: the Asia South Pacific Ostomy Association (ASPOA), the European Ostomy Association (EOA), and, the Ostomy Association of the Americas (OAA) which was a result of merging ALADO and NCACOA. National Ostomy Associations comprise the membership of the Regional Associations. The Regional Associations are governed by the provisions of their independent Constitutions. The House of Delegates of each Region is its highest authority with the Officers elected by its HoD. Each Region is responsible for acquiring funds to carry out the work of the Region through dues collection and through the solicitation of funds, sponsorships and grants from industry partners and Foundations. Each Region is responsible for paying its pro-rata share of the expenses incurred by the IOA CC.

What is the “new” organization governance?

The affairs of IOA are managed by a Coordination Committee that consists of each Regional President and one other member from each of the Regional Associations as designated by the Regional Association. The IOA CC appoints a non-voting Secretary. The representatives determine which of them will serve as Chair. The IOA CC provides services common to all Regions by maintaining an IOA Internet website, coordinating World Ostomy Day, and serves as a source of advice and counsel to the leadership of a Regional Ostomy Association if called upon by the leadership to provide this service. The IOA CC will also coordinate the distribution of information among the Regional Ostomy Associations, assist in the planning and formation of new Regional Ostomy Associations, and serve as a point-of-contact for allied organizations and corporations international in scope. The Regions are responsible for convening period conferences to which all Regions are invited to attend.

Who are the current IOA Coordination Committee Members?

Where is the IOA Contact Office?

Postal address:
International Ostomy Association Contact Office
P.O. Box 512
Northfield, Minnesota

50057
USA

Telephone:
+ 800-826-0826 (English only. USA calls only)

Fax:
+ 507-645-5168 (US)

E-mail:
IOA@ostomyinternational.org

Note: The IOA Contact Office is housed in the United Ostomy Associations of America’s home office

What is the link to the IOA Coordination Committee Internet Website?



CONSTITUTION of the INTERNATIONAL OSTOMY ASSOCIATION

1. NAME

The Name of the Association is The International Ostomy Association (IOA, hereinafter called “The Association”). When used in this Constitution, the meaning of the words “ostomy” and “ostomates” shall be expanded to include those with related alternative surgeries done to preserve continence which would otherwise have resulted in the formation of a stoma.

2. HISTORY AND ORIGIN

The International Ostomy Association was founded in 1975 to associate on a voluntary basis National Ostomy Associations in order to promote the health care of ostomates, to aid their rehabilitation and to improve their quality of life. The Association is a non-profit-making, nonpolitical and religiously neutral organization concerned only with the health and welfare of ostomates. It will advocate for the human rights of ostomates worldwide and is pledged to cooperate with medical, nursing and associate professions. IOA’s structure and governance were revised in 2010.

3. PURPOSE, AIMS AND OBJECTIVES

    1. The Purpose:
      To provide an Association of affiliated Regional Ostomy Associations that are committed to the improvement of the quality of life of ostomates worldwide. The work of the Association, managed by ostomates, will be organized by a Coordination Committee, consisting of representatives of each of its affiliated Regions. According to the Charter of Ostomates’ Rights, the Association encourages the highest possible standards of surgery, medical attention and patient after-care for ostomates, and, the use by medical professionals of trained ostomate volunteers as a member of the multi-disciplinary team organized to help rehabilitate ostomates. It motivates ostomates around the world to be engaged in forming and running Ostomy Associations.
    1. The Aims of the Association are:
      1. To provide to its affiliated Regional Ostomy Associations services common to all;
      2. To develop ideas and to provide a forum for the exchange of information of the work and experience within each Region;
      3. To assist in the planning of new Regional Ostomy Associations with the cooperation of IOA’s existing Regional members;
      4. To serve as a point of contact for allied international organizations
  1. The Primary Objectives of the Association are:
    1. To provide services common to all Regions by including:
      1. Maintaining an IOA Internet website;
      2. Using all means of technological communication;
      3. Coordinating World Ostomy Day;
      4. Being a source of advice and counsel to the leadership of a Regional Ostomy Association if called upon by the leadership to provide this service.
    2. Coordinate distribution of information among the Regional Ostomy Associations;
    3. To assist in the planning and formation of new Regional Ostomy Associations;
    4. To serve as a point of contact for allied international organizations.

4. MEMBERSHIP

A. Members of the Association shall include the following Regional Ostomy Associations who support the Constitution of IOA
  1. The Asian and South Pacific Ostomy Association;
  2. The European Ostomy Association;
  3. The Ostomy Association of the Americas;
  4. Any new Regional Ostomy Association approved by the Member Associations, after organization by the IOA Coordination Committee and its existing Regional Members.

5. ADMINISTRATIVE STRUCTURE

The work of the Association shall be carried out by the IOA Coordination Committee and assigned conveners, committees and/or task forces.

6. IOA COORDINATION COMMITTEE

    1. Composition
      The IOA Coordination Committee shall be composed of the President/Chairperson and one additional person selected by each Region from their Coordination Committee members who shall be ostomates.
    2. Governance
      • The members of the IOA Coordination Committee shall elect one of
        their members to Chair the Committee for a term of two years. The position of Chairperson will rotate from Region to Region.
      • Responsibility for the duties of the IOA Treasurer shall be determined by the IOA Coordination Committee.
      • Responsibility for the duties of IOA Secretary shall be undertaken by a member of a stable Association of an IOA Region. The appointment of the individual designated as Secretary shall be approved by the IOA Coordination Committee and shall serve until replaced by the IOA Coordination Committee.
        The Secretary’s Association will provide IOA with a permanent address.
      • No person shall be a member of the IOA Coordination Committee, be assigned as a convener, or serve as a member of a committee or
        taskforce who is in the business of marketing, manufacturing, selling or otherwise earning a livelihood from ostomy products.
      • Voting
        • The IOA Coordination Committee shall make consensus decisions.
    3. Functions

The functions of the IOA Coordination Committee shall be responsible, through delegation or appointment of appropriate person(s), for the following:

    1. facilitating an exchange of information and experiences among the Regional Ostomy Associations;
    2. maintaining an awareness of issues that could impact the rights and/or quality of life of ostomates globally;
    3. initiating, as deemed necessary, plans to organize new Regional Ostomy associations with the cooperation of IOA’s existing Regional Members;
    4. sharing experiences and organization information through periodic activity reports;
    5. maintaining the IOA website;
    6. maintaining a relationship with the international divisions of ostomy product manufacturers, professional medical organizations and non-profit associations who support the goals of IOA;
    7. coordinating World Ostomy Day activities;
    8. h. coordinating activities involving the Archie Vinitsky and IOA Professional Service Awards.
  1. Expenses
    The expenses of the IOA Coordination Committee shall be paid by the Regional Ostomy Associations.
  2. Meetings
    The IOA Coordination Committee shall not have any scheduled periodic meetings, communicating as necessary using the current electronic technology.

7. DISSOLUTION

Any resolution to dissolve the Association shall only come into force if passed by a unanimous affirmative vote of all members of the IOA Coordination Committee after approval of the Houses of Delegates of all affiliated Regional Ostomy Associations. Upon dissolution of the Association, any surplus funds of the Association, after discharging all legal liabilities of the Association, shall be distributed among the affiliated Regional Ostomy Associations in due proportion as established by the IOA Coordinating Committee.

8. AMENDMENTS

This Constitution may be amended by unanimous affirmative vote of all members of the IOA Coordination Committee after approval of the Houses of Delegates of all affiliated Regional Ostomy Associations. Amendments shall become effective immediately upon approval unless noted otherwise in the text of the amendment.

Amendments may be proposed at anytime by an affiliated Regional Ostomy Association by submitting the text of any such amendment/s in writing to the Chair of the IOA Coordination Committee.

Approved by the 13th World Council Delegates to take effect at the close of the 13th World Council Meeting on 19 November 2010.


IOA PHILOSOPHY

CHARTER OF OSTOMATES’ RIGHTS

IT IS THE DECLARED OBJECTIVE OF THE INTERNATIONAL OSTOMY ASSOCIATION THAT ALL OSTOMATES SHALL HAVE THE
RIGHT TO A SATISFACTORY QUALITY OF LIFE AFTER THEIR SURGERY AND THAT THIS CHARTER SHALL BE REALIZED IN
ALL COUNTRIES OF THE WORLD.

  • Receive preoperative counseling to ensure that they are fully aware of the benefits of the operation and the essential facts about living with a stoma.
  • Have a well-constructed stoma placed at an appropriate site, and with full and proper consideration to the comfort of the patient.
  • Receive experienced and professional medical support and stoma nursing care in the preoperative and postoperative period both in hospital and in their community.
  • Receive full and impartial information about all relevant supplies and products available in their country.
  • Have the opportunity to choose from the available variety of ostomy management products without prejudice or constraint.
  • Be given information about their National Ostomy Association and the services and support which can be provided.
  • Receive support and information for the benefit of the family, personal carers and friends to increase their understanding of the conditions and adjustments which are necessary for achieving a satisfactory standard of life with a stoma.
  • Receive assurance that personal information regarding ostomy surgery will be treated with discretion and confidentiality to maintain privacy.

ISSUED BY:
IOA COORDINATION COMMITTEE
JUNE 1993 … REVISED JUNE 1997

DISABILITY CHARTER

FOR USE IN COMBATTING DISCRIMINATION AGAINST OSTOMATES

  • DEFINITION OF DISABILITY
    A physical and/or mental impairment which can have a long-term adverse effect on a person’s ability to carry out normal day-to-day activities.
  • ARE OSTOMATES DISABLED?
    Incontinence is recognized as a disability, which means that anyone with a fecal or urinary stoma is, by definition, “incontinent” and can, therefore, by properly recognized as being disabled.
  • WHAT ARE THE EFFECTS OF BEING DISABLED?
    The Effects of Having a Stoma Can Be:

    • practical
    • physical
    • psychological and emotional
    • personal
  • THESE EFFECTS CAN RESULT FROM
    • being mindful of having a stoma
    • having to adapt to living with a stoma
    • psychological and emotional
    • continual treatment of the cause, as with cancer or Crohn’s Disease
    • ongoing worries about cancer
    • urological problems
    • sexual difficulties or impairments
    • adapting to the aging process
    • reactions of a spouse or partner
    • mobility
    • equipment problems
  • HOW AN OSTOMATE SHOULD BE TREATED BY OTHERS
    Other People with whom an Ostomate Comes in Contact Should:

    • not treat an ostomate any differently than other people
    • not ask personal questions which might be embarrassing
    • not make hurtful remarks about having a stoma
    • not show preference to people without a stoma
    • not assume that an ostomate is less capable than anyone else
    • respect an ostomate’s right to privacy
    • not be denied freedom to practice religious activities
  • FREEDOM OF CHOICEMost ostomates prefer not to be regarded as being disabled and do not wish to be officially registered in their country as a “Disabled Person.”A person with an ostomy has the Freedom of Choice to determine when, and to whom, they should identify themselves as a Disabled Person.Since most governments recognize that disabled people have special needs for which legislative provisions have been made, there are times when being classified as a Disabled Person has its advantages.
  • EMPLOYMENTFor a person with an ostomy, the disclosure that one is identified as Disabled Person can be a difficult problem, especially when filling out a job application form because of the possibility of discrimination.The right to exercise your Freedom of Choice, as explained above can be helpful when answering the question, “Are you Disabled?”If you are officially registered as being Disabled, you should answer YES.The nature of the work being sought and the environment of the workplace will be deciding factors as to whether you identify yourself as having a stoma. Remember, the Freedom of Choice is yours.

    When making your decision, keep in mind that some employers are under legal, as well as moral mandates to employ a certain number of disabled people.

  • IN SUMMARYIF YOU ARE NOT FORMALLY REGISTERED IN YOUR COUNTRY AS BEING DISABLED, YOU HAVE THE RIGHT TO DECIDE WHETHER IT IS IN YOU BEST INTERESTS TO DECLARE YOURSELF AS BEING DISABLED.ISSUED BY:
    IOA COORDINATION COMMITTEE
    JUNE 1997

IOA RESOLUTION ON TOBACCO SMOKING AND CHEWING

WHEREAS
cancer is the disease which necessitates almost 80% of all ostomy surgeries; and,

WHEREAS
a body of medical evidence has been complied that clearly demonstrates the existence of a definable link between the incidence of bladder and colon cancer and the use of tobacco products; and,

WHEREAS
the International Union Against Cancer (UICC) and the World Health Organization (WHO), in recognition of this
harmful relationship between cancer and the smoking and/or chewing of tobacco products, have published warnings and initiated tobacco anti-smoking and chewing programs for the betterment of health, worldwide:

BE IT THEREFORE RESOLVED that the International Ostomy Association (IOA) does applaud the International Union Against Cancer and the World Health Organization for their humanitarian efforts to eliminate a major cause of disease, and joins with them in their efforts to discourage and reduce the use of all such injurious tobacco products.

ADOPTED BY:
THE WORLD COUNCIL MEETING IN
NOORDWIJKERHOUT, THE NETHERLANDS,
18 – 20 APRIL, 2000

TRANSLATION: FATWA ABOUT PREPARATION FOR PRAYER FOR MUSLIM OSTOMATES

The Islamic faith has very definitive rules that must be followed in preparation and during the time of prayers. The question has arisen about the wearing of a pouch during the time of prayer.

Translation of Al-Azhar Fatwa

In the name of Allah, the most Gracious, the most Merciful.

AL-AZHAR Complex of Islamic Research
Fatwa Commission
(Counseling Islamic Commission)

QUESTION:

Submitted by Mr. Mohamed Hanafy Ahmed, General Manager of ConvaTec, Middle East:

“There is a large group of patients afflicted by colon and bladder cancer where the malignant tumor has to be removed together with the vital organ of the body so as to prevent the spread of disease. In such cases the natural opening of the body is by-passed and replaced by a stoma in the abdomen to work as an outlet through which urine or stool is emitted in an involuntary manner. Pouches used for collecting such matter are replaced when necessary.

At the time of prayers, the stoma patient is unable to change the pouch. Is it possible for such a patient to pray while the pouch is carrying such excrements and what is the rule in such a case?”

ANSWER:

Praised be Allah, Lord of all creatures and peace and prayers be upon the master of messengers Mohamed, his Kin and his followers.

“In answer to this question, we reply that whoever is in such a situation is considered to have a religiously legitimate excuse. Since a stoma patient cannot replace the pouch for each prayer, he may perform absolution at the onset of each prayer interval. He may then pray as many times as he may wish during this prayer interval. At the onset of a new prayer interval, the absolution performed in the last interval is no longer valid and the stoma patient should perform a new absolution for the new prayer interval and so on (for each of the five prayer intervals.)”

“Allah, Glory to be him is more knowledgeable than all.”

FIRST SIGNATURE
CHAIRMAN OF FATWA COMMISSION OF AL-AZHAR
ABD ALLAH ABD-ALKALIK AL MISHAD

8 JUMADA 1, 1407
8 JANUARY 1987